Govt expected to find ways to raise additional Rs 1 crore needed for girl’s treatment of girl: MP HC

I do e,
Aug
11
(PTI):
The
Madhya
P adesh
High
Cou t
o
Tuesday
expected
the
Ce t e
a d
the
state
gove me t
to
fi d
a
way
to
p ovide
fi a cial
assista ce,
co side i g
the
eed
fo
additio al
Rs
1
c o e
fo
the
t eatme t
of
a
th ee-yea -old
gi l
suffe i g
f om
‘Spi al
Muscula
At ophy
(SMA)
Type-2’,
a
a e
medical
co ditio .

Justice
Sa deep
N
Bhatt
of
the
I do e
be ch
of
the
HC,
while
hea i g
a
petitio
filed
by
th ee-yea -old
I do e
eside t
A ika
Sha ma,
oted
that
the
cost
of
the
i jectio s
equi ed
fo
SMA
t eatme t
is
app oximately
Rs
9.55
c o e,
a d
fi a cial
assista ce
of
up
to
Rs
50
lakh
is
available
u de
a
ce t al
gove me t
scheme.

Petitio e ‘s
lawye ,
Cha chal
Gupta,
i fo med
the
cou t
that
app oximately
Rs
8
c o e
have
bee
aised
th ough
campaig s
u
by
va ious
o -gove me tal
o ga isatio s
a d
cha itable
i stitutio s.

He
told
the
cou t
that
this
amou t
is
cu e tly
with
the
co ce ed
i stitutio s.

The
high
cou t
di ected
the
petitio e ‘s
lawye
to
submit
all
the
eleva t
details
f om
these
i stitutio s
a d
a
affidavit
stati g
that
they
a e
willi g
to
pay
the
t eatme t
amou t
to
the
All
I dia
I stitute
of
Medical
Scie ces
(AIIMS),
New
Delhi,
upo
the
bill
fo
the
i jectio .

The
cou t
stated
that
the
bill
f om
Nova tis,
the
compa y
that
ma ufactu ed
the
i jectio ,
must
be
made
available
to
AIIMS
fo
ecessa y
actio .

The
HC
oted
that
eve
afte
combi i g
the
ce t al
gove me t’s
assista ce
of
Rs
50
lakh
a d
the
app oximately
Rs
8
c o e
aised
th ough
c owdfu di g,
a
additio al
amou t
of
Rs
1
c o e
was
still
eeded.

“It
is
also
expected
that
looki g
to
the
special
ci cumsta ces,
the
gove me t
ca
also
fi d
out
some
way
to
co side
such
cases
u de
exceptio al
case
to
p ovide
fu the
fi a cial
assista ce
which
is
also
to
the
tu e
of
Rs
1
c o e
afte
addi g
Rs
50
lakh
as
by
the
gove me t
a d
Rs
8
c o e
which
a e
al eady
collected
th ough
c owd
fu di g
by
va ious
i stitutio s,”
the
HC
said.

It
is
also
ope
fo
the
state
gove me t
to
fi d
out
some
way
to
p ovide
some
fi a cial
assista ce.
It
is
also
expected
p obably
by
the
ext
date
that
the
fu the
amou t
ca
be
eceived
f om
othe
o ga isatio /
i stitutio
so
that
the
t eatme t
of
the
said
child
who
is
suffe i g
f om
a e
disease
ca
be
sta ted
at
the
ea liest.”
The
cou t
has
fixed
the
ext
hea i g
of
the
case
o
August
18.

Spi al
Muscula
At ophy
(SMA)
is
a
ge etic
eu omuscula
disease.
I
this,
the
moto
eu o s
p ese t
i
the
spi al
co d
g adually
get
dest oyed,
due
to
which
the
muscles
become
weak
a d
sta t
dege e ati g.

Moto
eu o s
a e
specialised
e ve
cells
fou d
i
the
b ai
a d
spi al
co d
that
t a smit
messages
f om
the
b ai
to
the
body’s
muscles
fo
va ious
fu ctio s,
i cludi g
b eathi g,
swallowi g,
a d
speaki g.
PTI
HWP
MAS
NP

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