Image
c edits:
itv
Not
all
supe he oes
wea
capes,
some
do
tia as
a d
do
the
good
wo k
such
as
five-yea -old
Rosie.
Afte
bef ie di g
Sid
at
a
bi thday
pa ty
a d
lea i g
he
uses
a
wheelchai
due
to
havi g
spi al
muscula
at ophy
type
1
(SMA1),
a
co ditio
which
causes
muscle
weak ess
a d
a
lack
of
moto
eu o
fu ctio
i
i fa ts,
she
wa ted
to
help.Rosie
set
he self
a
challe ge,
to
scoot
fou
miles
i
he
favou ite
p i cess
d ess
a d
so
fa ,
she
has
aised
ove
£4,000,
all
to
help
he
f ie d.Rosie’s
mothe ,
Michelle,
said
Rosie
was
cu ious
about
Sid’s
co ditio
a d
became
“quite
emotio al”
whe
she
lea ed
of
some
of
the
difficulties
he
faced.
“Sid
is
a
wheelchai -use
a d
Rosie
had
questio s
a ou d
that,”
Michelle
said
to
the
BBC.
The
mothe
said
she
explai ed
to
Rosie
about
SMA1
a d
how
Sid’s
pa e ts
had
bee
aisi g
fu ds
to
make
thei
home
mo e
accessible.
“Rosie
wa ted
to
aise
mo ey
to
help
Sid.
I
i itially
st uggled
to
thi k
what
she
could
do,
give
she’s
o ly
five,”
she
added.I
the
e d,
it
was
decided
that
Rosie
would
take
o
a
6.8
km
(4.2
mile)
scoote
challe ge,
completi g
a
lap
of
Leybou e
Lakes
Cou t y
Pa k
i
he
favou ite
p i cess
d ess.
“She’s
eve
bee
all
the
way
ou d
the
pa k
befo e,
but
we’ e
co fide t
she
could
do
it,”
Michelle
said.”Eve y
pe y
gets
Sid
close
to
the
house
adaptatio s
he
a d
his
family
so
despe ately
eed,”
Michelle
said.
A
date
fo
the
scoote
challe ge
has
ot
yet
bee
set,
due
to
weathe
co ditio s.Acco di g
to
the
cha ity
T ee
of
Hope,
Sid
was
t eated
with
the
£1.8m
si gle
dose
of
ge e
the apy
Zolge sma.
The e
is
still
o
cu e
fo
SMA,
but
medicatio s
a d
the apies
ca
help
ma age
the
co ditio .Sid’s
mum
Sophie
said
they
eeded
a
th ough-floo
lift,
which
equi es
a
exte sio
i cludi g
a
accessible
bed oom
a d
bath oom.
“He’s
big
fo
his
age
a d,
with
low
muscle
to e,
it’s
u safe
to
ca y
him,
especially
o
the
stai s,”
the
37-yea -old
said.
“Last
yea
he
b oke
his
a m
falli g
off
the
toilet,
so
we’ e
despe ate
to
make
ou
home
accessible.”The
e ti e
wo k,
she
said,
would
cost
£138,000.
She
added
that
she
was
“g ateful”
fo
eve y
do atio
a d
especially
tha kful
to
Rosie’s
“i c edibly
thoughtful”
suppo t.
The
family
is
bei g
suppo ted
by
T ee
of
Hope,
which
helps
families
avigate
thei
child’s
healthca e
jou ey
by
offe i g
a
fu d aisi g
se vice.
“We’ e
eally
pleased
to
be
suppo ti g
Sid’s
family
as
they
aise
fu ds
fo
the
home
adaptatio s
he
eeds,”
said
chief
executive
Becky
A d ew.
